• Chronic Illness

    A day in the Emergency Room

    On Friday, I ended up in the Emergency room a place that I hardly ever go too because when you have a chronic illness you get treated quite differently.  Although let me back up a second, I went to the ER because I was having pain, but not just any kind of pain, this was severe stabbing in my lower abdomen followed by cramping. I was bent over and could barely stand up straight, that is when I called the doctors office and guess what the nurse told me?? You got it! “You need to get to the ER immediately, there is something going on and you need to be…

  • Give it all back to God

    Changing water into wine in our lives

    Today, I read a story in the bible that talked about Jesus turning water into wine. Now I am sure at one time or another we all have heard this story, or someone has made a remark about Jesus turning water into wine.. walking on water and what not. Anyways, today I read John 2, but this time instead of just skimming through it, because I already know the story and I have heard it myself before. I actually read it a few times and really want to tell you all what I think of it and just tell you how incredible this story really is!! The beginning of John…

  • Appointments

    When should you switch to a different doctor?

    Sitting in a waiting room, nervously waiting to see the new specialist or doctor that you have found yourself or been referred too.  You have seen so many doctors and a lot of them have dismissed your symptoms, they have made you think that everything is in your head. That there is absolutely nothing wrong with you and that your making things up?? Have any of you had this? I feel like we all have at one time or another because there are doctors out there that just want to do the bare minimum, they treat you like a number instead of a patient. This does happen, that does not…

  • Appointments

    The care provided to you when you choose Mary Free Bed

    Mary Free Bed Rehabilitation This morning I had my 3+ hour appointment at Mary Free Bed, a local one that we have here in Michigan.  I went in already not feeling the greatest, but it was better than my “normal day” so I decided to give it my all.  The first hour of my appointment is usually an Occupational Therapist consult. I work with my legs mostly because they are weak. Throughout all the workouts I got really sick, the FLARE went from a 3 to a 10 on the pain scale in a matter of seconds. Let’s just say I freaked my therapist out quite a bit, she wasn’t…

  • Season's changing

    Spring Cleaning begins

    (This post contains affiliate links, please see disclosure policy for more info) Spring Cleaning!!! Can you believe it?! Today is finally the first day of spring, although we have a beautiful sun out here in Michigan it is still a little chilly. Perfect weather for some of us though. With the first day of spring here, you know what that means?? Spring cleaning… Although if you are anything like me you absolutely hate cleaning because bending down, or even being on your feet too long becomes a week or two bedridden.  So today I wanted to show you a few easy steps and cleaning products that I use that help…

  • DIY

    DIY gift with a heart felt meaning

    (This post contains affiliate links, please see disclosure policy for more information) This past week my mom was gone to go get my sister (Kristina) and bring her back from England. She was there making a difference in the world with Youth With A Mission (YWAM).  While they were gone I wanted to do something special, something that let them both know that I missed them very much but also to let them know they were coming home to my dad as well… Back in 2014, we lost my father to a brain hemorrhage, it happened very suddenly and without warning and brought us through some trials during and after.…

  • Gift of Life

    Becoming a donor

    In December of 2014, my family and I went through a tragic time in our lives, it changed us in ways we could never imagine. My father was rushed to the hospital in an ambulance and we all raced there right after him.  I can still remember to this day the phone call I got from my mom, “Kayla (her voice was very unsteady and she was freaking out), you need to go to the hospital right now! Something happened to your dad and he isn’t doing good at all.” I could hear the panic in my voice when I told my fiance now husband that we need to leave…

  • Procedure's

    What to expect with an esophageal manometry

    Hello everyone! Happy Friday, it’s finally time to say TGIF. I don’t know about anyone else? But this week for me has been extremely exhausting and I am so glad that it is over. Yesterday I had to go to one of the bigger Universities we have here in Michigan for two procedures. The first procedure is the one that I want to talk to you guys about. This one was horrible, to say the least, I wanted the tech to stop before she even got started. Have anyone of you ever had an esophageal manometry done? Well if you haven’t and you want to know what it keeps reading.…

  • Chronic Illness

    Conversation Time

    Here we go again, the intense ringing in my ears, that muffled sound of peoples voices. In a complete brain fog, like my brain is misfiring. I am there having another conversation with someone, but I cant hear them. I see their lips moving, but the sound of their voice is muffled, then suddenly the ringing gets more intense and that’s when a headache starts. I just keep smiling and nodding so they don’t think I am being rude because I am trying not to focus on everything that is happening to me at that very moment. Just hoping they aren’t asking me a question because I have no ideas…

  • Chronic Illness

    If your thinking about ending a relationship with someone who is chronically ill.

    Stares & glances coming my way, eyes of disgust, dismay, and confusion in these peoples eyes. “Why is this young looking girl wearing oxygen?” “What is that on her face?” “Why is she here, shouldn’t she be at home?” Going to events, being around people, the noise and just talking is so hard for me. The annoying cannula in my nose, the backpack I have to carry wherever I go. There was no way of stopping the looks, but trying to ignore them all is even harder. Feeling Judged Wherever You Go People just going on and living their lives, like this kind of thing could never happen to them.…